our little trooper

Alright, I'm doing this from my iPhone, so hopefully it works. Just wanted to post a quick update on crew for those friends and family members who have been wondering how he's doing.

We were finally able to bring crew home from the hospital last Friday...and it was one of the happiest days of my life! I was starting to feel trapped at the hospital we were at, and for different reasons, i wasn't completely confident in their ability to monitor and treat crew for the issues he was having. Zac and Emerson loved having crew home...Emmy is great at ignoring her parents and smothering him with kisses ALL day long. Zac prides himself in the fact that he has the "magic" that gets crew to sleep...they both have been very sweet to their baby brother...Such happy times! :) Here's Crew on our drive home...

On Monday we had an appointment with a pediatric neurologist at primary's. At the appointment, the dr. increased crew's phenobarbital dosage to help with the seizures because he had started having a few more earlier that day. He also did another EEG and said that crew really did seem completely healthy and he saw no major issues...good news. We were hoping that with the increased medication level, that the seizures would stop once again...but unfortunately they didn't.

Here's Crew getting his 4th EEG...they put 20+ electric probes on his head to monitor his brain activity & then tape his head up so the probes don't fall off, pretty cute...

Yesterday (Wednesday), Crew had atleast 13 seizures. They were lasting anywhere from 2-3 minutes. Once again, they aren't crazy violent seizures, just suttle twitching in his face, hands, and feet. We called the neurologist around 7 last night, and he told us that he wanted to admit crew to Primary Children's hospital...so that's what we did. It was a crazy late night...Chad and I are trying to function on 2-4 hours of sleep...and we're doing a pretty good job so far! Crew is doing great, the poor kid is such a trooper. I feel so bad for him having to be poked and prodded all over so often...but that's what needs to be done, so I can't complain too much. He had a spinal tap around 3 this afternoon and the doctors said he did great, he actually fell asleep once they got the needle inserted...I'm telling you, he's such a strong boy! He weighs 9 lbs. 6 oz. now and is just so dang cute with his little double chin! I've never had such a chubby baby before, zac & emerson were both pretty small & it was stressful at times, so I'm very thankful that this little boy likes his food so much...one less thing to worry about!!

Here he is just a few hours before we took him into primary's...He was so happy & content just sitting in his crib, soaking up some sun while looking at all the dots everywhere.

So as of now, we will be here atleast until Saturday...maybe longer depending on what we find out. We have some of the best doctors that we are working with and just hope that we'll be able to get some answers and figure out what exactly is causing these seizures to occur. Crew is in good hands, and we're so grateful for that!

and here's our little sleepy head of a trooper today...

Thanks for your thoughts and prayers...it always helps!! :)