finally our life is feeling a bit more normal again! after 8 days back at the hospital, crew has been home from primary's since last wednesday...and he has been doing great! we haven't noticed any seizing, so the medications seem to be doing their job for now...and we are so happy about it! while we were at primary's, crew underwent quite a bit of testing...a spinal tap, multiple blood tests, another MRI, and a 4th ongoing EEG which lasted 2 days...meaning the poor kid was hooked up to all those wires for 48 hours. not fun...but he really did great! all of the tests have come back completely normal so far...which is encouraging, but at the same time, we are left not knowing what has exactly caused crew to have the seizures. however, in the bit of research we have done, 30% of babies that are born with seizures are left undiagnosed...and eventually they do grow out of them. so we will keep our fingers crossed and hope that crew will outgrow them as well. it is encouraging to know that there is medication out there to help control the seizures if that's not the case. we are so grateful that he's so healthy otherwise...just perfect really! we love him like crazy...
18 comments:
it is so great to hear that you are ALL home, healthy and happy! what a relief that must be for you...i love the picture of emmy looking down at crew. she is such a little mommy!
xo, j
You have such beautiful little kids. We are glad he is doing well and is home. He seriously is such a cute little man.
Sarah
We're so glad to hear that Crew is doing well and back at home. Your friends all the way out here in South Carolina have been thinking about you and praying for you.
Greg, Allice and Gus
congrats on settling down to "normal" life! so glad he is home and doing great!
yay lynds we're so happy little crew is doing well. he is so darling and looks perfect with his big sis and bro!
I'm so glad he is home and doing well! He is so dang cute :)
Your home! That is such good news. Crew has the most kissable looking cheeks, I am sure he is getting smothered by his big sis and brother. We hope everything stays good and that you guys can enjoy some peace and quiet.
Oh my goodness...that is the CUTEST little squish EVER! I'm partial to my little man's cheeks, but those are totally kissable...Glad Crew is home, read your blog now and then and have been following since I heard about his ordeal. I am heading up a baby quilt project you can check it out on my blog...
Look at his perfect little lips! So cute! Glad everything is going well- I hope it continues to get better!
yay I'm so glad he's home, and you're starting to settle back in and everything. I hope he grows out of them too, but I'm glad in the mean time he is getting the care he needs. Your kids are beautiful! I can't get over Emmie's curls, she always looks so adorable.
Yay!!! We are so happy to read this. Hope all continues to go well. Your three little ones are beautiful!
Yeah! I'm so glad to hear that Crew is home and doing better. Thank you so much for letting me come see you guys in the hospital while I was in town. Crew is such a cute little guy. I still can't get over his cheeks. I love them. Keep me posted on what you guys find out. you know Aaron is all about knowing all the drugs and procedures. Here's to hoping he stays seizure free.
I'm so glad to hear this great news! I've been thinking so much about you and your sweet family!!! He is just beautiful!
I'm so glad to hear this great news! I've been thinking so much about you and your sweet family!!! He is just beautiful!
Lynds he is so cute and I am so glad that everything is okay! I am so glad you named him Crew because it fits him so well!
I'm happy that you guys are so close to one of the best children's hospitals. He is such a beautiful baby! Hang in there... we're thinking of you guys and praying for Crew.
I'm so glad he's home and doing better. He sure is a beautiful baby! I'm slow at commenting, so I hope the last month went well. Don't you wish you were on a cruise to mexico right now!
Amazing blog! I love it. Your blessing on sunday was beautitul!
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