March 15, 2010

the latest on crew

it's crazy to think that crew is already 2 weeks old!! time has flown by...but at the same time, it's seemed like an eternity...especially when it comes to leaving him there at the hospital. we really just want this little boy home. we were hoping to be able to bring home today, but he had another little seizure on saturday, so we need to keep working with the doctors to get his medication at the right level. i think most people get scared when they hear the word "seizure"...and i'm hear to tell you that these are minor seizures that crew is having...they're enough to notice if you're holding or observing him, but if you weren't right there, you would have no idea it was happening. the nurses in the NICU are busy, i understand that...but i have felt all along that they weren't watching crew as closely as they should be. i had walked into the NICU a couple of times to find his head covered with a blanket (to help him sleep better). obviously they can't be watching for seizing if he is covered up. so now crew is in an incubator...his body is fully exposed...and he LOVES it!! it's so funny to see him all sprawled out in there & it makes me feel better knowing that he's so comfortable. he's off of oxygen...which personally, i never really felt like he needed to be on in the first place. the day that they put him back on oxygen, i found 2 huge crusty boogers up his nose, so obviously he wasn't breathing well. i talked to the nurses and asked them to please check his nose before they put him back on oxygen this time...so hopefully they'll do that. i really do appreciate all the nurses are doing to help our sweet boy...they are great...but no one can love your baby like you would, so it will be nice when we can bring him home and just cuddle & love him as much as we want...

crew is scheduled to have an MRI this morning...which will give us more information & help us rule other things out. as for now, it's a waiting game...waiting for the blood around his little brain to reabsorb...and waiting to get the medicine at the right level so that he doesn't seize anymore. this medicine is a hard one to regulate...so we're slowly increasing it & hoping to get it figured out soon. :)

these pictures are from yesterday afternoon...he was wide eyed most of the day & just so dang cute!! don't you want to just squeeze him like crazy & eat him up??!! i do...

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he had lots to say to mom & dad yesterday...we love hearing those little baby coos...

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zac saying "i love you" to his little brother. even though it's fun for the kids to see crew through the window, it's not quite cutting it anymore. when we told emmy that she could go up to the hospital to see crew through the window, she said, "i not yike the window!" they are getting so anxious to be able to hold him again...and i don't blame them!! :)

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this has been quite the experience for our little family. i'm learning to take it a day at a time...and to count my blessings. i have so much to be grateful for...and by taking time to recognize those things each day, i'm finding the strength i need to get through this little experience...which down the road really will seem so brief...thank goodness!

17 comments:

Denise said...

lynds, thanks for the update. he's adorable. your post brought a couple tears to my eyes. the innocence of a child. the love of a child. hang in there, this too shall pass.

Daisha said...

He's so sweet. So sorry that he still isn't well enough to go home. Take care!

Holly Park said...

I not yike the yindows either! Although I am glad he's getting a little better care and enjoying himself in his warm little bed. Geez, he is so beautiful! Just hang in there. NICU is great, but I know exactly how you feel knowing that mama knows best! Hopefully you're hanging in there--I remember those long days and can't imagine having to do it with two little ones at home when you're just wanting to be with the babe! You are amazing... and keep listening to that mother's intuition!

Charlotte said...

Thanks for the update. We're still praying for you guys. Crew is completely precious. Good luck this week!

Thayerclan said...

What a darling little boy :)
Hopefully he can come home very soon!!

snow family said...

Lynds! First off... congratulations!! He is such a gorgeous little piece of heaven. I completely know how your feeling. It is so so hard to have a baby in the NICU. I remember the hardest thing was going home at night and having to leave my sweet babe in the care of others. All you can do is take it day by day. My prayers go out to you too.

Kelly Munns said...

hang in there lynds! you're doing the best you can. he totally looks like lyndsie offspring. you're a lucky momma. i'm sure it'll go slow, but it will be over before you know it. love you!!

Shalice said...

He is absolutely beautiful Lyndsie! I am so sorry you have had such a hard time....but I am sure things will end up being ok. We need Zac to come over and play with Braden....I will call you.

Hang in there....you can make it!

Keep the updates coming.

Jeff and Kandis said...

Glad to hear he might come home today, I hope so. I have gone through some similar things with Michael and all you can do is take it one day at a time, do what you can to help him, then just love them to death.
Congrats again!! He's sooo cute!

Tanya said...

he is so sweet. we will keep him in our prayers.

Fuller Family said...

I am so glad to hear that things are going better. You have been through a lot. He is such a darling baby. Just like your other kids! Hang in there. You are great parents!

Rebecca said...

thanks for the sweet pictures

Andrea S. said...

I'm sure these past two weeks have been the longest of your life. Yuck. He is looking chubbier through his cheeks already.

Hopefully you've gotten some good news over the past couple of days. Every time I tell Aaron an update he asks me about a million medical questions. He wants to know every medical detail about Crew and what is happening.

We are praying for you and hope he gets to come home soon.

margaret said...

Linds I can oly imagine how stressful this has been for you guys! He is so adorable! I hope that everything is ok with him, I'm sure it will be. Hang in there!

Cason and Marie said...

Lyndsie he is such a cute baby! Heather told me that he came home a few days ago. I am so happy to hear that! Congratulations to you and your little family!

Tiffany and Shane Speakman said...

LYNDS- what a tuff time....Im so glad that it's getting better!!! You are in our prayers!!! xoxo

The Reichmans said...

Lyndsie, he is darling.-Congratulations! I am so sorry that things have been so rough and i hope you get to bring him home soon. You are amazing.