March 25, 2010

our little trooper

Alright, I'm doing this from my iPhone, so hopefully it works. Just wanted to post a quick update on crew for those friends and family members who have been wondering how he's doing.

We were finally able to bring crew home from the hospital last Friday...and it was one of the happiest days of my life! I was starting to feel trapped at the hospital we were at, and for different reasons, i wasn't completely confident in their ability to monitor and treat crew for the issues he was having. Zac and Emerson loved having crew home...Emmy is great at ignoring her parents and smothering him with kisses ALL day long. Zac prides himself in the fact that he has the "magic" that gets crew to sleep...they both have been very sweet to their baby brother...Such happy times! :) Here's Crew on our drive home...

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On Monday we had an appointment with a pediatric neurologist at primary's. At the appointment, the dr. increased crew's phenobarbital dosage to help with the seizures because he had started having a few more earlier that day. He also did another EEG and said that crew really did seem completely healthy and he saw no major issues...good news. We were hoping that with the increased medication level, that the seizures would stop once again...but unfortunately they didn't.

Here's Crew getting his 4th EEG...they put 20+ electric probes on his head to monitor his brain activity & then tape his head up so the probes don't fall off, pretty cute...

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Yesterday (Wednesday), Crew had atleast 13 seizures. They were lasting anywhere from 2-3 minutes. Once again, they aren't crazy violent seizures, just suttle twitching in his face, hands, and feet. We called the neurologist around 7 last night, and he told us that he wanted to admit crew to Primary Children's hospital...so that's what we did. It was a crazy late night...Chad and I are trying to function on 2-4 hours of sleep...and we're doing a pretty good job so far! Crew is doing great, the poor kid is such a trooper. I feel so bad for him having to be poked and prodded all over so often...but that's what needs to be done, so I can't complain too much. He had a spinal tap around 3 this afternoon and the doctors said he did great, he actually fell asleep once they got the needle inserted...I'm telling you, he's such a strong boy! He weighs 9 lbs. 6 oz. now and is just so dang cute with his little double chin! I've never had such a chubby baby before, zac & emerson were both pretty small & it was stressful at times, so I'm very thankful that this little boy likes his food so much...one less thing to worry about!!

Here he is just a few hours before we took him into primary's...He was so happy & content just sitting in his crib, soaking up some sun while looking at all the dots everywhere.

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So as of now, we will be here atleast until Saturday...maybe longer depending on what we find out. We have some of the best doctors that we are working with and just hope that we'll be able to get some answers and figure out what exactly is causing these seizures to occur. Crew is in good hands, and we're so grateful for that!

and here's our little sleepy head of a trooper today...

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Thanks for your thoughts and prayers...it always helps!! :)

14 comments:

Holly Park said...

He is chubby! Love it! Sorry it has been so crazy for you guys. Once this craziness is behind you, you deserve a nice, long nap! I know how mentally and emotionally draining the hospital can be. And just being the best advocate for your little one is draining. You sound like you are holding up much better than I did. It is hard! Hang in there and know my thoughts and prayers are with you!

pam said...

oh man, he is one handsome little dude. Adorable. You guys are strong. Hang in there with all those ups and downs! We'll keep praying for you all--especially little Crew. Thanks for the update!

Mr. and Mrs. Pope said...

he is so sweet lynds. he seems to be rolling with the punches. i love how emerson and zac adore him, and how could they not. new babies are just the sweetest little things. glad you have some great doctors - you're in our prayers.

Mary and Ryan said...

He is too cute for words, just beautiful. I would say you are a trooper too. I'm thinking about you and your sweet baby:)

Denise and Nathan said...

Lynds....my sister, Cynthia, works at Primary Children's. She's in the human resources department. stop by her office anytime you need a little nap.

We'll keep praying for you. He's adorable. Hang in there....

RaeAnn said...

love you, love him. thank you for the update.

Kimberly said...

Oh what a beautiful little boy. I am so sorry to hear of the difficulty the little guy is going thru. You and your family are in our prayers. You are sure strong. XOXO

Natalie said...

You are in our prayers. I'm sorry you have to live at the hospital again; I know it's not much fun.

Nicole said...

He IS a trooper, and so are you and Chad! I can't imagine how hard it would be to be in your shoes, and we've been thinking about you every day!
I'm so glad he's eating well like you said-one less thing to worry about! He is so adorable and looks nice and healthy (ie chubby cheeks:) The picture of him in his crib looking at all the dots looks JUST like Zac!

Claire said...

He is SO SO cute and looks so much like Zac and Emmie! And he looks nice and healthy so I'm glad you don't need to worry about his weight, etc. I'm so sorry he's back in the hospital. I hope they find some answers for you guys and that he gets the treatment he needs. I know he will. Hang in there and please let me know what I can do for you guys. You're in our prayers!

kimberlee said...

He is darling. My prayers have and continue to be with your family and Crew.

Corinne said...

I hope things get figured out for your sweet Crew. He sounds like a tough little guy. I'm sure it's been draining for you guys...hang in there. I will definitely keep your family in our prayers.

The Bell Family said...

Lynds, he is so dang cute! I love his chubby little cheeks...so precious! You sound so positive about everything. It must be really hard to not know what's going on, but I'm sure he is in good hands at Primary. We are praying for little Crew and can't wait to meet him!

The Ellington's said...

Lynds - he is just a doll! Hope you're doing well too!